一位艾滋病患者的心愿:我渴望回到社会的怀抱
2009-1-6 13:06:59
简要内容:阿海的故事远比我想象的要复杂。我们总说一个人的童年经历可以影响人的一生,而阿海的童年简直可以用千疮百孔来形容,私生子的他被充满怨恨的母亲送到了农村,在养父母家过了7年草芥般的生活,直到姥姥把他接回城里,城里的家虽然有妈妈,但是他却丝毫体会不到母爱的滋味。
一次深入心灵的采访
采访人:穆琼
采访对象:阿海 年龄:37岁 职业:销售
阿海是一名艾滋病患者。
采访是在一个小区的居民楼里进行的。阿海很帅,身材修长,穿着一件雪白的衬衫,很难把他和艾滋病患者联系到一起,他看起来更像一个年轻有为的公司白领。需要说明的是,采访是在他们的办公地点——一个防艾滋病的民间组织,阿海在里面担任志愿者,主要负责对艾滋病患者的心理辅导。
阿海的故事远比我想象的要复杂。我们总说一个人的童年经历可以影响人的一生,而阿海的童年简直可以用千疮百孔来形容,私生子的他被充满怨恨的母亲送到了农村,在养父母家过了7年草芥般的生活,直到姥姥把他接回城里,城里的家虽然有妈妈,但是他却丝毫体会不到母爱的滋味。
这样的遭遇,阿海提起来的时候异常平静,仿佛在讲述别人的故事。我想,一个人要历经怎样的成长,才能坦然面对生命中那些曾经的伤痛?值得庆幸的是,如今的阿海有了生活的目标,志愿者的工作让他体验到生命的意义所在,那些曾经的不满与怨恨在一次次的付出与帮助别人中得到冲刷,那一刻,我突然理解了阿海的平静。
父亲,那个给了我生命的人,却拒绝见我
我是一个私生子,从小就被送到了农村,收养我的那家人对我很不好,从我记事开始,就没有穿过一件新衣服。唯一的衣服是一件大人穿过的棉袄,我一直穿到7岁,像个小叫花子一样,吃的东西也是邻居给的剩菜剩饭。3岁的时候养父母有了自己的孩子,本来就吃不饱穿不暖的我生活更是一落千丈,养父母想把我扔掉,可是也没地方可扔,就让我睡在马棚里。我成天脏兮兮的,有饭就吃一口,没饭就饿着,好心的邻居们接济我的时候都是小心翼翼的,他们怕惹麻烦,因为养父母在村里很厉害。
7岁那年,姥姥去村里看我,发现我过的是那样的生活,就把我接回了城里。
我偷偷地打量着这个家,打量着家里的每一个人,妈妈已经结婚了,还生了个小弟弟,继父对我也不理不睬。虽然回到了自己家,可是没有一个人关心我,只有姥姥心疼我,照顾我。可惜,2年后姥姥去世了,她一走就彻底没人管我了,我天天在外面瞎逛,小朋友们也不和我玩,都喊我野种,我冲上去和他们打架。回到家后,我妈一看我的样子就知道我在外面又打架了,她对我又是一顿打。挨打几乎成了我的家常便饭,我在心里暗暗发誓,等我长大挣钱以后,再也不回这个家了。可是,等我大些了,开始渐渐理解我妈的苦处,她恨我父亲,恨那个不负责任的男人,她把恨都转嫁到了我的身上。
我21岁时知道了父亲是谁,那时我刚从部队退伍回家,和一个好朋友经常在一起玩,其实他是我的亲四叔,他的大哥就是我的亲生父亲,这还是一个知情的大婶告诉了我,她问我,你知道二勇是谁吗?我说当然知道了,是我好朋友啊。大婶说,傻孩子,他是你的亲四叔。
以前,父亲的形象在我的心里既遥远又陌生,现在却突然离我如此之近,我渴望见到他,想看看他的样子,听听他的声音。我向四叔表达了我想见父亲的愿望,很快,四叔告诉我,父亲拒绝了,他不想见我。
我恨死他了,他连见我一面的机会都不给我。但是无论我如何恨他,我还是会偷偷地想,他长得什么样啊?过得好不好?年轻的时候帅不帅?有时候想着想着,也不知道从哪儿来的一股火,我没见过他也没说过话,我干吗想他?后来,每当我恨别人的时候都会想起我父亲,我很奇怪,可是那种感觉却是一样的。
我现在已经不想见他了,如果不是今天谈起这个话题,我已经快1年没想起过他了。
这些事情让我对亲情有一种抵触,我渴望被爱护但却敌视所有的人,也不相信任何人,哪怕这个人给我一个馒头,我都会想他有什么目的。以前,一说起这些事情我就会哭,而且很长时间都无法自拔,现在,它们已经成了我的一种经历,除了今天和你提起以外,我最后一次提起是在前年。
挣钱曾经是我人生的第一目标
从部队转业回家后,我被分配到一个小厂,每个月二三百块钱,我不满足那样的日子,决定自己做生意,我跪在我妈的面前,求她借给我500块钱的本钱,她不借,无论我怎么求都不行。她不是没钱,她开着一个商店,可她就是不借给我。没办法,我只好找朋友借,东拼西借凑齐了500块钱,开始了我的小卖部生意。开始真的是很辛苦,早上四五点蹬着三轮去市里进货,没钱进一整箱啤酒,就进半箱,人家不愿意,我就死乞白赖地求,人家看我那么小怪可怜的,就同意了。
辛苦1年后,我有了些积蓄,就开了一家饭店,由于选在一个汽车交易市场附近,那儿只有我一家饭店,生意特别火。我曾经发过誓,等我挣钱以后决不再回家。可是,当我有钱以后,我没有按照誓言去做,我不仅回家,而且还给我妈妈钱,给弟弟钱。我只是想证明我是有用的,但是钱并没有拉近我们母子的关系,我只有给钱的时候我妈妈才会露出笑脸,而平时她是不记得有我这个儿子的,甚至连一个电话也不打。
有钱以后,我渴望过上温暖的家庭生活,我希望像大多数人一样娶妻生子。可是这对我来说是个奢望,我对女人不感兴趣,这可能和我童年的经历有关,我渴望受到保护。后来,因为感情的事情,我的心情一度很低沉,成天把自己关在家里,饭店由母亲接手,等我心情好些想要回饭店的时候,母亲已经不肯交还给我了,为此,我和她大吵了一顿,带着我的积蓄来到了天津。
我觉得自己在做生意方面挺有头脑的,在朋友的帮助下,我的生意很快走上了正轨。
那个时候,我的人生目标就是挣钱,挣的钱越多越好,只要我有钱,别人就不会看不起我。这种观念直到我成为一名艾滋病患者的志愿者后,才发生了彻底的改变。
在帮助别人成功的时候,我会感到很骄傲
我现在敢于承认自己是艾滋病患者,是斗争了很长时间的结果。4年前,当我拿到检查结果,看到上面写着HIV阳性时,我觉得天都塌了,一切都没有了。我离死只有一步之遥了。
那个时候我什么都不想,只想一个人静静地离开这个世界,我把所有的朋友的联系方式从我手机里删掉,生意交给店长打理,进货也只靠电话联系。除了去医院拿药,我把自己封闭在家,每天除了傻傻地看电视,就是望着天花板,想着剩下的日子该怎么过。有时我会特别恐惧,对死亡的恐惧,也许自己哪一天就离开了这个世界,心里非常悲伤,朋友看不到了,亲人也看不到了。
这样的日子过了2年。后来,我认识了一个志愿者,也是我的老师,他给我做了心理辅导,带我参加相关的活动和培训,慢慢的,我了解到艾滋病是一种慢性疾病,如果积极治疗,对生命是没有威胁的。在老师的疏导下,我逐渐的恢复信心,对生活也有了希望,开始打理我的生意,5个月的时间我挣了40万。在老师的影响下,我也开始从事志愿者的工作。
做志愿者很辛苦,在跟艾滋病患者打交道的过程中,我的情绪经常会受到影响,积极性受到打击,甚至我帮助过的人转身就在背后说我的坏话,这让我很委屈,很多次我都想放弃这份工作,我自己好好活下去多好啊,我干吗要管别人呢?可每到这个时候,一个男孩儿的脸就会出现在我的脑海中,他也是一个艾滋病患者,由于他受到的帮助不到位,就要去世了,本来他是可以活下来的。这对我是一个很大的打击。我对自己说,不管受多大的委屈也要坚持下去。
在帮助别人的过程中,我的内心也在不断调整,让我把原来的恨和不满都化解掉。每次生气时,我就会反反复复地想我帮助过别人或别人帮助过我,这已经成为我生活中的乐趣,也是我心情的调节器。
我的心态也发生了很大的变化,这些变化包括对生死、对亲情以及对人生的态度。现在,钱已经不是我生命中最重要的东西了,它已经是第二位或是第三位的了。我最大的心愿,就是希望社会能接纳我们这个人群。我每天都在想这些东西,挺累的,脑子很乱,有时还会自言自语。虽然我们是艾滋病患者,但我们仍然是社会人,我们渴望回归社会并回报社会。
我知道我的理想实现起来很难,有时看到快要逝去的生命也会心灰意冷,心里负担很重,自己会不会像他们一样?每到这时,我就会鼓励自己,好好吃药,积极治疗,一直活到80岁。那样,我就可以帮助更多的人。
2009-1-6 13:06:59
Summary Content: A Hai story than I imagined complex. We always say that a person's childhood experiences can affect one's life, while the A Hai childhood riddled with problems could be described as an illegitimate child, he was full of resentment of the mother was sent to rural areas, in the adoptive home after 7 years in total disregard for like life, until his grandmother back to the city, the city's home despite her mother, but he has no experience of less than a taste of motherly love.
An in-depth interview with the soul
Interview by:穆琼
Interview: A Hai Age: 37 Occupation: Sales
A Hai is an AIDS.
An interview in a plot carried out by residents of the building. A Hai very handsome, tall and slender, wearing a white shirt, it is very difficult to contact him and AIDS together, he looks more like a young white-collar companies. It is an interview in their office - an anti-AIDS non-governmental organizations, which serve as volunteers in the A Hai, is mainly responsible for AIDS patients psychological counseling.
A Hai story than I imagined complex. We always say that a person's childhood experiences can affect one's life, while the A Hai childhood riddled with problems could be described as an illegitimate child, he was full of resentment of the mother was sent to rural areas, in the adoptive home after 7 years in total disregard for like life, until his grandmother back to the city, the city's home despite her mother, but he has no experience of less than a taste of motherly love.
This experience, together阿海提when abnormal calm, as if telling other people's stories. I think that a man who wants what kind of growth experienced in order to calm those who face life's pain? Fortunately, today's A Hai With the goal of life, the work of volunteers so that he experienced the meaning of life lies, those who have dissatisfaction with resentment at a time to pay and help others to be washed, that moment, I A Hai suddenly understood calm.
Father, that gave me life, but refused to see me
I am an illegitimate child, from an early age was sent to the rural areas, the adoption of my family that I am very well, from my notebook to start, there will be no through a new dress. The only adult clothing is a worn cotton-padded jacket, I have been wearing to 7 years old, like a small beggar, like something to eat is also a neighbor to the leftovers. 3-year-old when the parents have their own children, was not warm enough to wear my life is a disastrous decline, foster parents, I want to throw away, but have no place to throw, let me sleep in the horse shed . Dirty all day long I have to eat a meal, no meal on an empty, well-intentioned neighbors are either when I carefully, and they fear of getting into trouble, because the adoptive parents in the village very formidable.
7 years old, grandmother to the village to see me, I have found is that kind of life, I had to take back the town.
I secretly looked forward to the home and looked at everyone at home, my mother had been married, but also gave birth little brother, stepfather also ignore me. Although returned to their homes, but no one care about me, only the grandmother distressed me, take care of me. Unfortunately, 2 years after the grandmother died, she left me completely没人管, I瞎逛every day outside, and my children not to play, all wild species, I shout, I dashed to and they get into a fight. After returning home, my mother looked like I knew I was fighting it, and she told me it is a fight. Beaten almost become my routine, I secretly vowed in his heart, and I grew up to make money later, no longer go back to this home. However, some such as me, and began to understand the grievances of my mother, she hated my father, the irresponsible hate men, she had passed on to the hate me.
I know 21-year-old when his father who, when I just Force veterans return home, and a good friend to play together regularly, in fact, he is my pro-tert, his older brother is my father, this is still a Informed of the ladies told me, she asked me, you know Eryong is? I said of course know, is my good friend, ah. Aunt said, silly child, he is pro-tert you.
Previously, his father's image in my mind is far stranger then, and now suddenly I am so close off, I want to see him, to see if he would like to look and listen to his voice. Tert I expressed my desire to want to see his father soon, tert told me that his father refused, he did not want to see me.
I恨死him, he did not even have the opportunity to see my side not to me. But no matter how I hate him, I will secretly wish that he长得什么样ah? How are bad? Young Shuai Shuai not? Sometimes thinking about thinking, do not know where to come from a fire, I have not seen过话he did not say, I think he Why? Later, when I hate when people will think of my father, I find it strange, but that feeling is the same.
I now do not want to see him, if not talk about this topic today, I have fast 1 year did not think of off him.
These things for me to have a family conflict, but I'm looking forward to being hostile to love all people, do not believe that anyone, even if this person give me a bread, I would think he has what purpose. Previously, a talk about these things I would cry, but a very long time are able to extricate themselves now, they have become a kind of experience I have, in addition to today and you mention, the last time I brought in the previous year.
Money was the first goal of my life
Demobilized from the army to go home, I was assigned to a small factory, two to three hundred dollars a month, I am not satisfied as the day to decide their own business, I kneel in front of my mother, begged her to lend me 500 yuan of capital, she same business, no matter how I seek will not work. She is not money, she opened a store, but she is not lent me. No way, I had no choice but to find a friend in order, the East has been put together to fight the West by 500 money, started a small shop of my business. Really is very hard to start the morning, four or five points to the city three蹬着purchase, no money into a FCL beer, on into the semi-boxes, people do not want to, I would like to seek死乞白赖, people look at me then小怪poor, it agreed.
1 hard years later, I have some savings, they opened a restaurant, as a result of the election in a car market near a hotel where I am the only business in particular fire. I have sworn-fat, and so I never go home after earning money. However, when I have money, I did not do it in accordance with the oath, I not only home, and returned to my mother money, money to his brother. I just want to prove that I am useful, but the money did not help us close the relationship between mother and son, I can only give you the money when my mother will show a smiley face, and usually do not remember that she is my son, and even a phone call also not to fight.
Money, I long for a warm family life, I hope, like most people do get married and have children. But for me it is a hope, I am not interested in women, which could, and my childhood experience, I desire to be protected. Later, because of the feelings of things, my mood was very low, all day locked himself in a home, the mother took over the hotel, and I feel better when you want to return to the hotel, the mother has refused to be returned to me, to this end, I and she had a big argument with my savings came to Tianjin.
I feel quite in the business aspects of the mind and the help of friends, my business very quickly on the right track.
At that time, my life goal is to earn money, money the better, as long as I could afford to pay, others will not look down on me. This concept until I became a volunteer with AIDS only after a complete change took place.
Success in helping others, I will feel very proud
I now dare to admit that he is living with AIDS is the struggle for a very long time results. 4 years ago, when I got the results and saw that says HIV-positive, I think every day collapsed, everything is gone. I am from the death of only one step away.
At that time I do not want anything, just want a person to leave this world quietly, I put all my friends contact information deleted from my cell phone, business manager to the care and maintenance, the purchase also rely on telephone contact. In addition to the hospital拿药, I closed their home every day傻傻addition to watching TV, is looking at the ceiling, thinking about how the rest of the day off. Sometimes, I will fear, fear of death, and perhaps their own day left this world, was very sad, and friends can not see, and do not see the relatives.
Such a day after 2 years. Later on, I know a volunteer is also my teacher, he gave me to do a psychological counseling, to take me to participate in related activities and training, slowly, I understand that AIDS is a chronic disease, if active treatment of Life is not a threat. In the teacher's ease, I gradually regain confidence and hope of life have also started to take care of my business, 5 months I earned 400,000. Under the influence of the teacher, I also began to engage in volunteer work.
Volunteers to do very hard to deal with AIDS patients, I often emotions will be affected, enthusiasm will be affected and even those who helped me turn on behind the scenes say that I am ill, so I am wronged, many times I want to give up the job, I live a good number of good, why I want to control others? To this every time a boy's face will appear in my mind, he is also an AIDS patient, as a result of the help he was not in place, it is necessary to die, had he will be able to survive. This to me is a big blow. I said to myself, no matter how much aggrieved by to stick to it.
In the process of helping others, my heart has been adjusted so that I hated the original and dissatisfaction are resolve. Every time when angry, I would repeatedly to think I helped other people or other people helped me, it has become the joy of my life, but also my mood regulator.
My mentality has changed, these changes include the fate of family ties, as well as the attitude towards life. Now, money is not in my life the most important thing, and it is already the second or third place, the. My greatest aspiration is to hope the community will accept our crowd. Every day I would like these things, the挺累his mind into confusion, and sometimes talking to himself. Even though we are living with AIDS, but we are still social beings, we are keen to return to society and pay back the community.
I know that my ideals and it is very difficult to achieve, and sometimes to see the life will be gone soon disheartened mind a heavy financial burden, he or she will like them? Every time, I would encourage their own good medication, aggressive treatment, has been lived to the age of 80. , I can help more people.