一夜情后他们活在艾滋病“未知病毒”阴影下


一夜情后他们活在艾滋病“未知病毒”阴影下

 
 
 
 
 

一夜情后他们活在艾滋病“未知病毒”阴影下

http://cq.QQ.com  2009年10月15日09:07   南方都市报     

 

 

 

一夜情后他们活在艾滋病”未知病毒“阴影下

类似的“阴性”检测单“病友”们都有若干张。

北京火把09:55:54

怎么都不说话了(?)

北京火把09:56:33

这么静(,)太可怕了

云中仙09:58:39

是啊!

云中仙09:58:43

太可怕了!

北京火把66 10:07:07

我下了,出去走走,这里静的(得)吓人(。)

8月22日上午,网友“北京火把”和“云中仙”,在一个叫做“寻找真相的人们”的Q Q群(以下简称“真相群”)里留下以上几句话后下线。

 
 

这天是星期六,群里更多的网友活动在现实中。但对于“北京火把”们而言,这个Q Q群是他们的精神支柱,因此,群内周末的安静让他们感到无限恐惧。

这个群聚集了一群具有相似特征的人:他们大多在“高危”性行为之后患病。他们最初怀疑自己感染了艾滋病,怀疑促使他们反复做H IV抗体检测,结果却一再呈现阴性。这并没有让他们轻松起来,他们继而坚信他们感染了同一种未知的病毒,这一病毒类似艾滋病,还能够通过唾液、体液等轻易传播给亲朋。而“医生也无法找到他们的病因”。

为了寻找这个“未知的病毒”,他们通过Q Q群走到了一起,他们希望政府对这个“未知的病毒”给予关注。

目前,在中国类似的Q Q群共有数十个之多,每个群里都有一两百人。而北京、上海、广州、杭州、武汉等地的艾滋病临床权威机构透露,每家医疗机构每年都接待几千名这样的“病人”,而且,这个数量逐年增加。

很多临床专家一致认为,他们得的是“艾滋病恐惧症”(以下简称“恐艾症”)。

而这个人群却不认同这个称呼,也不认同专家们的判断,他们给自己定义为“阴性H IV感染者”、“隐性H IV感染者”等等。这个定义,却被专家们看做患者自己的“臆想”,既不能得到医学界的认同,更不能引起政府的关注。

寻找和碰壁,希望和失望,求生和破灭,这一切交织在一起,使得他们精神煎熬、生不如死,有人失业,有人离婚,有人自杀,有人恶意传播疾病。

因此,无论是单纯的“恐艾症”,还是感染了未知的病毒,这个逐渐庞大的群体都注定无法永远存在于网络之间。

“怪病”来袭

检测均为阴性,症状趋于一致

去年9月份一天,出差到成都的洪生找了小姐。他以前也去娱乐场所找小姐,每次都采取安全措施。

这天晚上漱口时,他发现牙龈上长了一个水泡,第二天就消失了,接着就开始发烧,不过输液后很快就好了。

但因为刚刚找过小姐,他还是担心自己被传染了艾滋病。他记得,那天晚上自己套了安全套,而且因为酒后麻木,他没有成功,但曾和小姐亲吻过。

他上网搜索艾滋病相关资料,发现唾液不会传染艾滋病。随后的十几天,他过得很开心。

但21天之后的早晨,噩梦开始了。他醒来后发现自己盗汗很严重,腿上有一条线一样的疼痛,额上出现大量疹子。那天上班,他精神恍惚,下班回家后,他用电吹风吹手脚,消毒。他又上网搜索资料,开始极度恐慌,手脚几乎瘫痪。他给自己下了“诊断书”:他得了艾滋病。

那夜,他彻夜难眠,盗汗继续,而且浑身疼痛。

第二天晚上,妻子想出去打麻将,他却宣布自己得了艾滋病,他还坦白自己找了小姐。妻子脸色煞白,沉默了良久后说,“你在外面包养情人,我都不怪你,你怎么能做这种事情呢?”

几天后,也就是那次性行为后的第28天,洪生就去医院检测H IV抗体。三天后,当得知检测结果是阴性时,妻子高兴得从沙发上跳起来。但洪生躺在沙发上一动也没动,因为他更加相信网上的资料,他认为,他感染的是一种“未知的病毒”。

尽管他知道,在感染艾滋病病毒3个月后的检测结果才算确诊,但在3个月内,他就检测了6次H IV抗体,均为阴性。

他原本可以安心了,但很多症状在全身出现,吃药、打针都无效,他最后放弃了医院治疗。

他认为那名小姐把病毒传染给了他,可当他去寻找那名小姐时,她已经不在了。

之后,他的妻女也出现了类似症状,但到医院检查过很多次,只显示血常规不正常、免疫力偏低。

他在四川大学华西医院的免疫科、神经科、性病科、感染科等都检测过,感染科还组织了专家对他们做了3次会诊,都没发现感染艾滋病或者其他病毒。因为查不出病因,医生没开一粒药。

通过Q Q群,洪生发现,在网络里,有很多和自己有相似困惑的人,他们自患病起,反复检测H IV抗体,都呈阴性,很多人在北京、上海、广州、深圳等地的医疗机构做了多次检测,不仅排除了H IV感染的可能性,还排除了甲肝、乙肝、肿瘤、结核病等等相似病症可能性。

他们认为,他们感染了同一种“未知的病毒”,或者是艾滋病的变异病毒,因为他们的症状相似:有急性期;在急性期,同时出现很多症状,如腹泻、感冒、皮疹等等;急性期之后,一些症状消失,一些症状反复出现,一些症状长期存在。

李太生是北京协和医院感染内科的主任医生、卫生部艾滋病专家咨询委员会临床组组长和艾滋病临床专家组副组长,蔡卫平是广州第八人民医院感染科主任、国家卫生部艾滋病临床专家组专家。

通过长期临床观察,李太生、蔡卫平都发现,类似病人的症状确实渐渐趋于一致,至于原因,他们也不知道“但他们绝非得了艾滋病”。

李太生总结认为:该病发病可呈急性过程,突然发作并突然缓解;也可呈慢性过程,逐渐发展,长期不缓解。临床表现不特异,多为类似急性H IV感染期表现,如低热、纳差、乏力、盗汗、头痛、体重下降、咽痛、口腔溃疡、腹胀、腹泻等。体格检查多无异常发现,偶有不典型的皮疹。

病人们的检测结果还显示了相似的数据:他们的免疫细胞CD 4普遍偏低,血常规不正常等等。

极强的传染性?

“病人”们认为它可通过唾液、汗液轻易传播

8月27日晚,A ndy出现在深圳火车站广场上。他看上去很健康。

但他自称,他因为高危行为而感染这个病毒至今已经有好几年了,盗汗、咽喉炎、鼻炎、消化不良、容易疲劳等症状至今犹存。

“看上去我们都很健康,工作也正常,但是自身的症状,外人是无法体会到的。”A ndy说。这是一个和洪生有着相似病情的男人。

现在,他认为自己的生命并不重要,重要的是,他想知道该病是否具有传染性,家人是否被传染了。

传染性是这个人群精神煎熬的主要原因。他们自认为都将病毒传染给了家人,因此有着强烈的负罪感。很多人希望自己真的得了艾滋病。“因为艾滋病至少不会通过生活接触传染给家人。”厦门的“求佛”说。

不过,医生们告诉他们,他们的病并不具有传染性,但又建议他们“最好不要去献血”。

“大二”经过多次检测,H IV均呈阴性,当地疾病预防控制中心的医生建议他去看神经科,同时,亲自打电话给他妻子,要求她解除“隔离”。因为之前,“大二”为了避免把病毒传染给家人,和妻儿保持距离,吃饭也分开。

医生的举动,让压抑了四五个月的“大二”放松了下来。之后,他和妻子发生了两次无套性行为,并开始抱儿子了。

但他说,两周以后,妻儿都出现了高烧、腹泻、皮疹、鼻炎等症状。

因此,他愤恨医生、专家们的“恐艾说”。他和国内知名的艾滋病临床专家桂希恩、时代强等人都通过电话,一旦他们提出“恐艾说”,他就会火冒三丈,并几次砸掉手机。

“病人”们认为,这种病具有极强的传染性,而且可以通过唾液、体液轻易传播。

上海的“隔离”为了检测唾液是否传染该病,故意往一个同事的杯子里吐了一口口水。他自称,一个星期后,他发现这个同事出现了和他相似的症状。

洪生描述的传染情形更让人恐惧。

在洪生最初告诉妻子自己得了艾滋病之后,妻子按照土方,每天上山收集十几种药草,煮沸后,让他在一个相对密封的空间里熏,使身体出汗。

后来,他分析妻子正是通过汗液被传染的。因为他在熏身体时,浑身都是汗液,而妻子端水、倒水,忙进忙出,和他有肌肤接触。

他自称,当年10月份,妻子也出现相似症状。

他们十分疼爱女儿,从小到大,女儿的衣服都是手洗,从不和大人的衣服一起放在洗衣机里洗,也不和大人共用一块香皂。

女儿是住校生。在他生病期间,女儿偶尔回家时,他坐过的沙发,女儿都不能坐,她要在电脑上玩游戏,他会提前将电脑、键盘、桌椅擦很多遍,并消毒。他还单独吃饭。

但在他发病3个月后,女儿也病了,出现了咽喉炎、盗汗、关节痛等病症。他回想认为,女儿被传染的可能性是,在妻子未发病之前,她和女儿并没有分开来吃饭。

女儿今年刚考上当地最好的高中、最好的班级,而现在他只希望她能活下去。

9月初,刚刚开学,女儿就连续高烧几天,以致无法上课。但令洪生不解的是,他和妻子从不发烧,只有女儿发烧,如果是同一种病,为什么有不同的症状呢?

“一年来,我增加了无数白发,一年来,我失去了所有,我没有了健康,没有了快乐,我的家人随着我陷入深渊,我失去了幸福的家庭,随着病情的恶化,家人对我的抱怨与日俱增。”洪生在手机短信里说,“你不知道我的小孩有多优秀,但我们知道她的名牌大学梦早已破灭,而她不知道,看着她不停抗争,我心如刀绞啊。”

他的妻子怨恨地对他说,“如果女儿没被感染,我会原谅你,我自己被传染就无所谓了。”

洪生在病后一个月左右,才加入“真相群”,通过“病友”们的交流,他才发现大家症状相似,而且该病可以通过唾液、汗液传播。

他很后悔加入群的时间太晚了,“如果早点加入,早知道这个病的传染性很强,可能不会传染给家人了”。

不全是臆想

“不排除一部分人真的感染未知病毒的可能”

“深圳上帝”是“真相群”的群主。他自称,他无意间把疾病传染给了哥哥、侄子,还有同事。

他所在的公司有40多人,他通过同事们用药来判断,该公司约有20多人被他传染。他认为,共用一部电话机、聚餐、勾肩搭背的亲密行为等方式均可传染该疾病。

不过,他至今还和女朋友生活在一起,并且有接吻和性生活,但她却没有明显的病症。她一直坚信他没有艾滋病,希望他早日“脱恐”。显然,“深圳上帝”描述的传染性自相矛盾。

艾滋病临床专家李太生、蔡卫平、桂希恩等人通过临床发现,这类人群所描述的传染性是“臆想出来的”,他们很少带着家人一起来看病,只有少数人带着家人来看病,而家人偷偷告诉医生,“我没病,他非要说我有病”。

然而,如洪生、“大二”这样确实全家患病的案例还有很多。因此,能够解释的说法是:这个人群并不同属一种情况,有人恐艾,有人真的病了,有的具有传染性,有的所谓“传染性”确实是臆想出来的。

“大二”认为,Q Q群里的病友,鱼龙混杂。他自2007年底,加入“阴性感染者”的Q Q群,通过网友交流,他收集并加入的“阴性感染者”的Q Q群有二三十个之多,每个群里都挤满了人。

他发现,有的“病友”后来确诊口腔感染念珠菌,或者皮肤卡波西等其他病症,也有少数人是确诊的艾滋病人,但是他们混在群里散布谣言,吓唬“病友”。

有些人性行为比较混乱,得病后,连去医院检查的勇气都没有,他们在群里看病友交流病情,以对应自己的症状。

而更多的人则是“恐”,有的人纯粹“恐”,如怀疑老公出轨等,有些是因为有高危性行为,或修脚、打架等行为,而产生某些病症,如舌苔白、乏力、肠胃紊乱等等,而因此恐惧。

“大二”认为,“这些症状都是可以‘恐’出来的”。

“真相群”原群主是福建的一个网名叫“平安”的网友,他原本也以为自己感染了“未知的病毒”,因此建了这个群,后来,他的症状都消失了,他遂将这个Q Q群转交给了“深圳上帝”。

“大二”估计,Q Q群中,恐艾人群占80%,剩下的人确实病情严重,他们排除了H IV,但出现了很多和艾滋病相似的病症,且传染性很强,“很可能是一种新的病毒”。

桂希恩等专家们的看法,和“大二”一致,“大多数是恐艾症,但不排除一部分人真的感染未知病毒的可能”。

网络“传染”

他们在QQ群里聚集、交流、依赖、对立

然而,网络的便利,和求生的共同目的,使得这些不同情况的人,凝聚在一起,并同声同气:他们得了同一种病,而且是“未知的病毒”。

他们往往在出现症状之初,登录艾滋病论坛对自己的病情进行判断,但艾滋病论坛一向以检测结果为判断标准。

“阴性感染者”大量出现,频繁的质疑出现在艾滋病论坛上,版主和志愿者试图说服他们“脱恐”,却无法作出令人信服的解释,因此导致双方论战升级,相互指责谩骂。

“版主和志愿者因此变得更加偏执,一方面只要抗体阴性,他们就无视症状,而劝导咨询者不采取任何保护措施地回家睡觉。另一方面对质疑的声音一律封杀留言和ID”。“扬州孤独”说。

之后,这些“阴性感染者”纷纷向Q Q群聚集。他们在群里交流病情、用药的经验等等。

久而久之,Q Q群里弥漫着两种截然对立的情绪,一种是消极情绪,这种人认为,这是一个“未知的病毒”,政府不管不问,因此只能等死,甚至有人提议“一起去哪儿死”。

云南的“德宏”则在群里说:一提到家人,我的心沉到极点,真想tm d去大街上狂杀、滥杀。

“进Q Q群要防止变成抑郁症。”“大二”说,“因为病友们从各处,甚至国外网站上搜集资料,有人打电话咨询专家,然后把这些有根有据的信息都发到群里,让人感到绝望。”

Q Q群里更多的人则是持积极态度,他们通过网络搜索到各个医疗卫生机构、病毒研究机构、国内国外媒体的联系方式,以及温家宝总理、卫生部部长信箱等等,然后通过致电或写信的方式,反映病情,以期引起政府的关注和研究。

“海南从生”是“真相群”的管理员,他在病后一个月就加入“真相群”,他认为QQ群有着积极的意义。他不去医院治疗,因为他发现,有病友在群里说,专家会诊多次也找不出病因,还有病友说,医生给他开的是治疗精神分裂的药等等。

“有人退出群,但不久又回来了,因为没有群,没有大家一起努力,就丝毫没有找出病因的可能。”“海南从生”说。

但“大二”不无担忧地表示,他们每天都挂在群里,有人直到凌晨两三点才下线,他们精神上很无助,很容易被人利用。

Q Q群,以及网络的利弊两面在“冲动是魔”身上表现突出。

她和情人都检测出阴性结果后,恐惧减轻了。但之后,身上出现的红斑,让她又生恐惧,于是,上网搜索相关的资料,并且加入“真相群”。

她最初怀疑自己是“恐”的,因为病友们描述的很多症状她都没有。但她后来发现,那些原本没有的症状陆续在自己身上出现了,比如肠鸣、头疼、舌苔白等等,而且与病友们描述的发病过程相吻合。所以她坚信,这病不是“恐出来的”。

她怀疑是情人传染给她这个未知的病毒。但他并不承认自己有病。她通过观察也没发现他有异常表现,而且舌苔也不白。

但她仍然认为情人是唯一的传染源,她于今年2月份与他发生性关系,之后就出现病症。她不断看医生,但是所有的医生都认为,她恐艾,“头脑有问题”,建议她对症治疗。在病友们的建议下,她去检查C D 4免疫细胞,结果是500/m m 3,接近正常。

然而,那些仍未消失的症状让她精神崩溃,她不怎么搭理同事,也不和同事们一起聚餐。

“工作糊里糊涂的。一回宿舍就面对死亡,只有上网和病友们说话,麻醉自己。不敢下网,面对现实。”她说,“在群里,大家共同努力,引起有关部门对这个病的关注,还有些盼头,如果没有Q Q群,一个人真不知道该怎么办?”

但她也承认,如果没有Q Q群,她也许不可能往未知病毒上想。

不信医生,信“病友”

很多“病人”在网上搜索各种症状,然后对号入座

和很多“病友”一样,“乐天”完全相信网络。

他自2007年10月1日出现症状以来,仅仅HIV抗体检测就达23次,他甚至到中国疾病预防控制中心检测,结果都是阴性,但他还是不相信检测结果。

两年来,他不分日夜地在网上搜索资料,了解该病,“这个病的每个症状都和艾滋病相似,所以肯定是艾滋病变异”。

他还认为,他比医生更了解这种病,“医生们用老办法治疗新情况已经不行了”。他吃的中药药方也是从网上查的,“不吃中药早趴了”。

有些病,他还是要到医院去对症治疗,比如鼻窦炎等,还有喘气时呼出腐臭的气息等问题,都通过医院的对症治疗而痊愈。

而牙周炎、腋窝淋巴结、胸痛等症状还没消除,他认为,这些病也可以找医生对症下药,但他不愿意去医院,“如果暴露自己是艾滋病患者,就无法在当地生存,所以,即使找医生,我也不在本县城找医生,我都是到外县去”。

洪生也不相信医生,而信任“病友”。

曾有医生给他开过胸腺肽、转移因子等药,但他和病友们在网上交流时,病友们说,这些药不能吃,那是艾滋病患者免疫力到最低时,医生才开的药,而医生给他开这些药,是“拔苗助长”,没有好处。因此,他只吃了2粒就没再吃了。

广州第八人民医院感染科主任、国家卫生部艾滋病临床专家组专家蔡卫平临床发现,很多“病人”在网上搜索各种症状,然后对号入座。而Q Q群之类的渠道,又容易使一个群体相互影响。

因此,蔡卫平认为,相关部门应该再多些艾滋病知识的宣传,让人们更多掌握艾滋病的知识,网络信息则很容易产生误导。

北京协和医院感染内科主任医生李太生也认为,网络有时“坏事”,本来没病,当看到网上描述的详细的症状后,或者通过Q Q群和病友们交流后,就有人“恐了”,其实,他们对艾滋病知识一知半解。

“我们一般不建议有了高危行为后,大量上网搜索信息,网上的信息杂,我们还是建议,如有人担心、焦虑的话,找正规的医疗卫生机构咨询,各级疾病预防控制中心都提供免费的咨询。”广东省疾病预防控制中心艾滋病防治研究所医生符秋显说。

她认为,一个正常人可以通过网络了解艾滋病常识,但一个正处于精神焦虑状态下的人,就不要上网,因为“网上信息量大,但很多信息断章取义,有的只出现一个标题,我是专业医生,看到网上的信息都晕了”。

阴影下的聚与散

“花果山”和丈夫离婚了,“悔恨”却选择回归家庭

对该病传染性的确信,和网络“传染”的恐惧,正在影响很多原本幸福的家庭。

重庆的“花果山”,因为和丈夫对待疾病的态度不一致而离婚。

丈夫在找了小姐后,持续感冒了2个月。当他告诉她,他可能感染了未知病毒时,她已经有肠鸣等症状了。

之后,上高中的儿子也有了类似症状,今年5月1日竟在学校晕倒。她的儿子成绩优秀,就读的高中也是当地最好的高中。

但他们多次检测的结果都是阴性,从今年开始,“花果山”就不再上班了,她要为儿子寻找病因。

她通过查阅网上资料发现,他们的症状和艾滋病相似,所以她坚信一家人感染了艾滋病,她不停地打电话向全国各地的专家咨询,还四处检测。

“他反对我上网。我也认为他的观点是对的,但我做不到,我想到儿子就害怕”。“花果山”说。但丈夫认为,即使是死,也要有尊严,他担心她四处求医问诊,让所有人都知道他找了小姐。

今年6月份,她主动提出离婚。虽然离婚了,但暑假时,两人还要住在一起,因为他们不想让儿子知道实情,他们想等儿子高中毕业后,才告诉他。

开学了,儿子住校,她立刻搬出去住。因为丈夫的单位离家很近,因此她将家留给了丈夫住。她计划去别的城市,找一份工作,“过一天算一天”。

在离婚协议书上,双方将所有财产留给儿子。丈夫负责儿子学费、生活费等,妻子的一切由自己解决。

有散也有聚。

云南“悔恨”,原和丈夫关系不和,经常吵架,几次闹过离婚。2007年7月份的一天,丈夫在吵架时,用水烟筒砸她,她便约网友见面。

该网友帮她写过论文,两人感情很好,见面后发生了性关系,第二天,她就出现了症状。

尽管检测的结果是阴性,但她仍然恐惧了很久,尤其在看到丈夫和孩子出现感冒、皮疹之类的症状时,她就感觉生不如死,曾试图买几份保险后自杀。

After one-night stand that they live in the AIDS "unknown virus" under the shadow of
http://cq.QQ.com 2009 Nian 10 Yue 15 Ri 09:07 Nanfang Dushi Bao



 

A similar "negative" test list "sufferers" who have a number of Zhang.

Beijing torch 09:55:54

How not to speak of (?)

Beijing torch 09:56:33

So quiet (,) is horrible

Cloud cents 09:58:39

Yes ah!

Cloud cents 09:58:43

Awful!

Beijing torch 66 10:07:07

My next, and walk out of here quiet (too) scary (.)

August 22 morning, the netizen "Beijing torch" and "cloud fairy", in a called "search for the truth of the people" of the QQ group (hereinafter referred to as the "truth groups"), has left after more than a few words off the assembly line.
 

That day is a Saturday, where more netizens group activities in reality. But for the "Beijing torch" were concerned, this QQ group is their spiritual pillar, therefore, within the group so that they can feel a quiet weekend, great fear.

The group brought together a group with similar characteristics: they were mostly in the "high risk" sexual behavior after the sick. Their initial suspect are infected with AIDS, and suspect that prompted them to repeatedly do H IV antibody test, the result is repeatedly showed negative. This does not allow them to ease up, they then believe they are infected with an unknown virus, the virus similar to AIDS, but also through saliva, body fluids and other easily transmitted to family and friends. The "Doctors can not find their cause."

In order to find this "unknown virus", they came together through the QQ group, they want the government to this "unknown virus" attention.

At present, the QQ in China, a similar group of as many as there were dozens, each group has one or two hundred years. And Beijing, Shanghai, Guangzhou, Hangzhou, Wuhan and other places of the AIDS clinical authority revealed that each medical institutions received each year thousands of such "patients", and that this number increasing every year.

Many clinical experts agree that they have to the "AIDS phobia" (hereinafter referred to as "AIDS Phobia").

And this group did not agree with this call, the judge did not agree with the experts, they gave themselves is defined as "negative for H IV infection", "hidden H IV infection" and so on. This definition, but was the patient's own experts as "imaginary", the medical profession can not be recognized, but not cause the government's attention.

Finding and hitting the wall, hope and disappointment, survival, and shattered, all woven together, making them mental suffering, rather die than live, some unemployed, some are divorced, some committed suicide, it was a malicious spread of disease.

So, whether it is purely "AIDS Phobia", or infected with unknown virus, in this emerging large groups have not be forever doomed to exist in the networks.

"Abnormal" struck

Test were all negative, symptoms in line

One day last September, travel to Chengdu, Hong-sheng looking for a lady. He had also visited places of entertainment to find young lady, always taking safety measures.

This evening, mouthwash, he found that the longer a bubble gum the next day disappear, and then they started a fever, but soon after transfusion enough.

But since just talked to Miss, he was worried about being infected with AIDS. He recalled that the night had its own set of condoms, but also because of drink numb, he did not succeed, but Miss Zeng He kissed.

Search for AIDS-related information on the Internet, he found that the saliva can not transmit AIDS. The next 10 days, he had a good time.

However, the morning after 21 days, the nightmare began. He woke up and found himself sweating very serious, there is a line of the same leg pain, the amount of the large number of rash. That work, he completed his trance, work at home, he used hair dryer blowing limbs and sterilization. Search for information on the Internet, he began to extreme panic, arms and legs a virtual standstill. He gave herself a "certificate": he suffer from AIDS.

That night, his sleep all night long, night sweats continue, and the whole body pain.

The following night, his wife came up with play mahjong, he has declared himself got AIDS, he found himself frankly Miss. His wife, his face pale, silent, after a long time said, "you're out keeping and feeding lovers, I do not blame you, how do you do these things?"

A few days later, that is, that after having sex the first 28 days, Hong-sheng went to the hospital detection of H IV antibodies. Three days later, when informed that test results are negative, the wife happy jumped up from the sofa. However, Hongsheng lying on a sofa one not moving, because he believed that more information on the web, he believed that he was infected is a kind of "unknown viruses."

Although he knows that in HIV infection 3 months after the test results be considered confirmed, but in 3 months, he tested six times H IV antibodies, were all negative.

He could have peace of mind, but many of the symptoms appear in the body, take medicine, injections are ineffective, he finally abandoned the hospital for treatment.

He believes that one lady spread the virus to him, could be looking for that name when he went to Miss, she had gone.

Later, his wife and daughter also appeared similar symptoms, but to the hospital to check many times, only display routine blood test is not normal, low immunity.

West China Hospital of Sichuan University, he's immune, neurology, sexually transmitted diseases, infection detection section and so on before, infected Section also organized an expert on the three times they have done consultation, found no HIV or other viruses. Because it can not find the cause, the doctor did not open a medicine.

By QQ group, Hongsheng found that, in the network, there are many, and they have similar confusion of people who since the illness, the repeated detection of H IV antibodies, were tested negative, a lot of people in Beijing, Shanghai, Guangzhou, Shenzhen and other places many medical institutions have done a test, not only ruled out the possibility of H IV infection, but also ruled out hepatitis A, hepatitis B, cancer, tuberculosis, and so the possibility of similar symptoms.

They believe that they are infected with the same kind of "unknown virus", or variations of AIDS virus because they have similar symptoms: There are acute phase; in the acute phase, while there are many symptoms such as diarrhea, colds, rashes, etc.; acute period, a number of symptoms, a number of recurring symptoms, a number of symptoms a long time.

Lee Tai-sheng, Beijing Union Medical College Hospital medical director of Infectious Diseases, Ministry of Health Expert Advisory Committee on AIDS, the clinical team leader and deputy head of the AIDS clinical expert group, Guangzhou 8th People's Hospital of Cai Weiping, director of infection, the Ministry of Health AIDS clinical expert group of experts.

Through long-term clinical observations, LI Tai-sheng, CAI Wei-ping have been found, similar to the patient's symptoms do gradually converge, as for the reasons they do not know "but they are by no means suffer from AIDS."

Lee Tai-sheng concluded that: the disease was acute course of disease can be sudden onset and sudden ease; also showed chronic process, the progressive development of long-term non-release. Clinical manifestations are not specific, mostly similar to the acute period of the performance of H IV infection, such as low-grade fever, anorexia, fatigue, night sweats, headaches, weight loss, sore throat, mouth ulcers, abdominal distension and diarrhea. Physical examination no abnormality was found more than occasional non-typical rash.

Patients with their test results also showed a similar data: their immune cells, CD 4 is generally low, blood is not normal and so on.

Highly contagious?

"Patient" who think it through saliva, sweat easily spread

August 27 evening, A ndy appear in the Shenzhen railway station square. He looked very healthy.

However, he claimed he was high-risk behavior because of it has been infected with the virus for several years, and night sweats, pharyngitis, rhinitis, dyspepsia, fatigue and other symptoms still lingering.

"It looks like we are all very healthy and work properly, but its symptoms can not be keenly aware of outsiders." A ndy said. This is a and Hongsheng men have a similar condition.

Now, he thinks his life is not important, it is important, he wanted to know whether the disease is contagious, family members whether it was infected.

Infectious spirit of this group the main reason for suffering. They view themselves as would be transmitting the virus to their families, so there is a strong sense of guilt. Many people hope that he is indeed suffer from AIDS. "Because of AIDS, at least not transmitted to his family through life." Xiamen "求佛" said.

However, the doctor told them that their illness was not contagious, but advised them to "best not to donate blood."

"Big Two" After repeated testing, H IV were negative, the local Center for Disease Control and Prevention, the doctors advised him to see a neurologist at the same time, personally phoned his wife and asked her to lift the "isolation." Because before, "sophomore" In order to avoid transmitting the virus to their families, and keep their distance from his wife and children, eating, separately.

Doctors move to suppress the four or five months of the "sophomore" at ease. After that, he and his wife have taken place in two sets of non-sexual, and began to adopt a son.

But he said, two weeks later, his wife and children have suffered high fever, diarrhea, rash, rhinitis and other symptoms.

Therefore, he hated doctors and experts, "said Ai fear." He and his well-known clinical experts in Gui Xi-en AIDS, times Strong, who were both over the phone, and when they put forward the "fear of Ai said," that he would be furious, and several Zadiao phone.

"Patient" who believe that this disease is highly contagious, and can be saliva, body fluids easily spread.

Shanghai's "isolation" In order to test whether saliva-borne disease, and deliberately to a colleague a cup vomit saliva. He claimed that a week later, he discovered that his colleagues appeared similar symptoms.

Hongsheng describe the situation even more fear of infection.

In Hongsheng initially told his wife got AIDS after his wife in accordance with earth, the mountains every day to collect a dozen herbs, after boiling, let him in a relatively enclosed space, smoked, and the body sweating.

Later, his wife, his analysis of infection is through sweat. Because he smoked the body, completely covered in sweat, while his wife side of water, pour, is kept constantly busy, and his skin contact.

He claims that year in October, his wife also appeared similar to the symptoms.

They are very loving daughter, from small to large, her daughter's clothes are hand washing, and never and adults together in the washing machine washing clothes, and adults do not share a soap.

Daughter is a live-in students. During his illness, his daughter occasionally coming home, he sat on the sofa, his daughter could not sit, she would like to play games on the computer, he will advance to the computer, keyboard, wiping tables and chairs many times, and disinfection. He is also a separate food.

But he became ill three months later, her daughter is sick, and there pharyngitis, night sweats, joint pain and other symptoms. He recalled that his daughter was the possibility of infection is that before any illness of his wife, she and her daughter did not eat separately.

Her daughter just passed her exams this year, the best local high school, the best classes, but now he just hopes that she can live.

Early September, just school, his daughter on a continuous high fever a few days, making it impossible to class. But to make Hongsheng understand is that he and his wife never fever, and only daughter of a fever, if it is of the same disease, why do have different symptoms?

"Over the past year, I have added numerous white hair over the past year, I have lost all, I have no health, no happiness, my family as I plunged into the abyss, I lost my happy family, with the deterioration of the condition, family members complained to me every day. "Hongsheng where in the cell phone text message said," you do not know how good of my kids, but we know she's prestigious universities has long been shattered dreams, but she did not know, looked at her non-stop protests I Xinrudaojiao ah. "

Resentment against his wife, he said, "If the daughter not being infected, I will forgive you, I do not care that they have been infected will."

Hongsheng the illness about a month before she joined the "truth groups" through "sufferers," their exchange, he was discovered that the symptoms are similar, and the disease through saliva, sweat or dissemination.

He was regret at joining the group too late, "If early to join, as early as aware of this highly contagious disease may not be transmitted to his family again."

Failure is the imaginary

"Does not exclude some people are really infected with unknown virus may be"

"Shenzhen God" is the "truth groups" in the main group. He claimed that he inadvertently transmitted the disease to the brother and nephew, as well as colleagues.

His company has 40 people, through his colleagues to determine the drug, the company he was about 20 people have been infected. In his view, shared a telephone, banquets, arms around intimacy, etc. can be transmitted the disease.

However, he and his girlfriend still live together, and there is kissing and sex life, but she has no obvious symptoms. She has been convinced that he was not AIDS, hoped that his early "breaking away from fear." Clearly, the "Shenzhen God" described in the infectious self-contradictory.

AIDS clinical expert Li Tai-sheng, CAI Wei-ping, Gui Xi-en, who by clinical findings, such as described in the infectious crowd was "wholly contrived" and they rarely see the doctor together with their families, only a handful of people come to the hospital with their families, The family secretly told the doctor, "I did not sick, he insisted that I was sick."

However, as Hong-sheng, "Sophomore" This is indeed there are many cases of family illness. Therefore, be able to explain the argument is: This crowd is not the same kind of situation, it was fear of Ai, it was really sick, and some infectious, some so-called "infectious" is indeed imagined out.

"Big Two" believe, QQ group inside the sufferers, quite a mixed bag. He took the end of 2007, by adding "negative infections," the QQ group, through the surfers, he collected and added "negative infections" in QQ group has as many as twenty or thirty in each group are hosting with people.

He found that some of the "sufferers" was diagnosed with oral Candida infections, or skin, Kaposi's and other diseases, there are a few people who are diagnosed with AIDS, but they are mixed in with groups inside spread rumors, scare, "sufferers."

Some people are sexually confused, sick, even the courage to go to hospital for medical examination did not, they are sufferers in the group watching the exchange of the patient's condition to correspond to their own symptoms.

And more people are "afraid", some people just "fear", such as suspected her husband off the rails, and some is because there are high-risk sexual behavior, or pedicure, fights and other behavior, arising from certain diseases, such as the fur white, fatigue, gastrointestinal disorders, etc., and therefore the fear.

"Big," that "these symptoms can all be 'fear' out."

"Truth groups" of the original group of owners is a network of Fujian called "safe" netizens, he also thought he had been infected with "unknown virus", so to build this group, and later, his symptoms had disappeared, he was this QQ group transferred to the "Shenzhen God."

"Big Two" estimates, QQ group, the fear of AI accounted for 80% of the population, and the remaining people are really serious condition, they ruled out the H IV, but there have been many similar diseases and AIDS, and highly infectious, "is likely to is a new virus. "

Gui Xi-en, etc. the views of experts, and "sophomore" unanimously, "the majority of AIDS Phobia, but does not rule out some people are really infected with unknown virus might be."

Network "contagion"

They gather in groups in the QQ, communication, dependence, antagonism

However, the network facilities, and the survival of the common purpose of making these different situations, unite together and speak with one voice: They got the same disease, but also "unknown viruses."

They are often the beginning of the onset of symptoms, log on AIDS forum to judge their own condition, but AIDS has always been to test the results of the Forum criterion.

"Negative infections," appeared in large numbers, frequently appears in AIDS challenge forum, moderators and volunteers tried to persuade them to "take off their fear," but can not make a convincing explanation, leading to escalation of both polemics and mutual accusations abusive.

"Moderator and volunteers to become more paranoid, therefore, on the one hand as long as the antibody-negative, they ignore the symptoms and advise the consultants do not take any protective measures to go home to sleep. The other hand, questioned the voice of all blocked messages and ID" . "Yangzhou lonely" said.

Later, these "negative infections" have been gathered to the QQ group. In the group where they exchange illness, drug use experiences.

Over time, QQ group was filled with two diametrically opposite emotions, a kind of negative emotions, such people believe that this is an "unknown virus", the Government turning a blind eye, so you just die, and some even proposed that "together Where to die. "

Yunnan, "Dehong," in the group stated that: a reference to family, my heart sank extreme, tm d really want to go crazy on the streets killing, killing.

"Incoming QQ groups want to prevent becoming depressed." "Sophomore," said, "because, she has from everywhere, even abroad, to collect data on the site, some people call consultants, and then these well-founded information is made to a group where people feel hopeless. "

Group where more people QQ is a positive attitude, they search through the network to various medical and health institutions, the virus research institutions, the media contact at home and abroad, as well as Premier Wen Jiabao, Minister of Health-mail and so on, and then call or write mode, reflecting the patient's condition in order to raise the Government's concern and research.

"Hainan From birth" is the "truth group" administrators, a month after he was sick on the inclusion of "truth groups", he thinks QQ group has a positive meaning. He did not go the hospital for treatment because he found that sufferers in the group, said the expert consultation and again, unable to find the cause, as well as sufferers, said doctor prescribed medicine for the treatment of schizophrenia and so on.

"Some people out of group, but soon returned, because there is no group, no people to work together, we did not find the cause of the possible." "Hainan from birth," said.

But the "Big Two" not without worries that they are hung in groups where every day, it was only two to three points off the assembly line until the early morning, they feel very helpless and can easily be manipulated.

QQ group, as well as the advantages and disadvantages of both sides of the network in the "impulse is the devil" on the outstanding performance.

She and her lover were detected in negative results, fear reduced. But then, who appears erythema, so she came up with another fear, therefore, Internet search-related information and join the "truth group."

She initially suspected that he is "probably" because, she has described many of the symptoms she did not. But she later found that those who had no symptoms appeared one after another in his body, such as the bowel, headaches, white fur, etc., but also, she has described in the pathogenesis of match. So she firmly believes that the disease is not "out of fear."

She suspected that her lover transmitted to this unknown virus. But he does not recognize his illness. She had not found him by looking at abnormal performance, and the fur is not white.

However, she continues to believe that love is the only source of infection, she was in February this year, a sexual relationship with him, after the appearance of symptoms. She continued to see a doctor, but all of the doctors that her fear of Ai, "head problems" and suggested she symptomatic treatment. In, she has a suggestion, she went to check the CD 4 immune cells, the result is 500/mm 3, near normal.

However, those symptoms have not disappeared her mental breakdown, she was less Dali colleague nor dinner with colleagues.

"Work groggy. A dormitory on the face of death, only the Internet and, she has to speak, intoxicate themselves. Not the net, face the reality." She said, "In the group where we work together to rise to the relevant departments attention to this disease, and some to look forward to, without the QQ group, one person really do not know how to do? "

But she also acknowledged that if there is no QQ group, she might not want to go to the unknown virus.

Do not believe in doctors, letter "sufferers"

A lot of "patient" in online searches a variety of symptoms, and then pigeon-holing

And a lot of "sufferers", as "Lotte" completely trust the Internet.

He since October 1, 2007 symptoms since the HIV antibody test only reached 23 times, he even went to the Chinese Center for Disease Control and Prevention, detection, the result is negative, but he still did not believe the test results.

For two years, he was day and night regardless of the information in the online search to understand the disease, "each of the symptoms of this disease and AIDS are similar, so it must be variations of AIDS."

He also believed that he was better than any doctor a better understanding of this disease, "doctors were using the old methods of treatment of the new situation has not succeed." He ate a traditional Chinese medicine prescriptions are from the Internet check it, "do not eat a traditional Chinese medicine as early as lying."

Some patients, he was going to the hospital to symptomatic treatment, such as sinusitis, etc., as well as foul breath exhaled when breathing problems are symptomatic treatment through the hospital cured.

And periodontitis, axillary lymph nodes, chest pain and other symptoms not the elimination, in his view, these patients can also be a doctor prescribe the right medicine, but he was reluctant to go to the hospital, "If they are exposed to AIDS patients, it can not survive in the ground, so even if the to find a doctor, I do not find a doctor in this town and I are going to go outside the county. "

Hongsheng do not believe a doctor, but trust "sufferers."

Dr. Zeng You give him too thymosin, transfer factor and other drugs, but he and, she has on-line exchanges,, she has said, these drugs can not eat, it is immune to the lowest people living with AIDS, the doctor of medicine was opened, while the doctor prescribed these drugs is "Destructive Enthusiasm," no good. Therefore, he took just eat the two no.

Department of Infectious Diseases, Guangzhou 8th People's Hospital, director of the National Ministry of Health AIDS clinical expert group of clinical experts, found that Cai Weiping, a lot of "patients" in online searches a variety of symptoms, and unpleasant. The QQ group like the channel, but also easy to make a group influence each other.

Thus, CAI Wei-ping that relevant departments should be further increased knowledge of AIDS advocacy so that people gain a greater understanding of AIDS knowledge, network information can easily be misleading.

Beijing Union Medical College Hospital, director of Infectious Diseases Dr. Lee Tai-sheng also believes that the networks are sometimes "bad", had no diseases, when you see the line after the symptoms described in detail, or through the exchange of QQ groups and, she has, after some people "fear of the" in fact , their scanty knowledge of AIDS.

"We generally do not recommend high-risk behavior has been a large number of Internet searching for information, online information on miscellaneous, we recommend that, if people are worried and anxious, then find the formal consultation of medical and health institutions at all levels, Center for Disease Control and Prevention are available free of charge consultation. "Guangdong Provincial Center for Disease Control and Prevention, AIDS Institute, said Dr. Fu fall significantly.

She believes that a normal person can understand through the network of AIDS knowledge, but one is in a state of mental anxiety, the person, do not access, because "large amount of information online, but a lot of information out of context, and some appear only one title, I am a professional doctors, see the online information is dizzy. "

Under the shadow of poly-and casual

"Huaguo" and her husband divorced, "remorse" has chosen to return to home

Convinced of the infectious disease, and the network "contagion," the fear is affecting many of the original happy family.

Chongqing's "Huaguo" because her husband's attitude towards the disease while the divorce is inconsistent.

After her husband found a lady, sustained a cold for 2 months. When he told her that he may be infected with an unknown virus, she has other symptoms of the bowel.

After high school son had similar symptoms, May 1 this year, actually fainted in the school. Outstanding achievements of her son, studying in high school the best local high school.

However, they repeatedly test results were negative, beginning this year, "Huaguo" no longer work, and she wanted to find the cause for his son.

She passed access to online information found that similar to their symptoms and AIDS, so she convinced a person infected with AIDS, and she kept calling him to the expert advice across the country, but also around the test.

"He's against me online. I also think that his view is correct, but I can not, I think her son would be afraid." "Huaguo" said. But her husband believe that even in death, but also with dignity, he was worried that she sought medical treatment four Wenzhen let everyone know that he found a lady.

In June of this year, she initiated a divorce. Although the divorce, but the summer, the two still live together, because they do not want to let her son know the truth, they want to and so her son graduated from high school before telling him.

School, and her son live at the school, she immediately moved out to live. Because of her husband's unit close to home, so she left her husband live in the house. She plans to go to another city, find a job, "a day to day."

In a divorce settlement, the two sides of all the property left her son. Husband, son, is responsible for tuition fees, living expenses and so on, all by themselves to solve his wife's.

There are also scattered Poly.

Yunnan "remorse", the former husband and discord, often quarrel, divorce uttered several times. One day in July 2007, the husband in a fight when the water chimney smashed her, and she is about to meet anyone.

I was able to help her written papers, two very good relationship, a sexual relationship occurred after meeting the next day, her symptoms appeared.

Although the test result is negative, but she still fears for a long time, especially in the cold to see her husband and children there, rash-like symptoms, she felt rather die than live, had tried to buy a few insurance then committed suicide.
 
 
 
 
 
 

[ 作者:佚名    转贴自:本站原创    点击数:196    更新时间:2009-10-16    文章录入:nnb ]

 

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