
拍照时,小新要求,用关注艾滋病防治的标志红丝带挡住自己的脸
同一个单元,同一间厨房,
同一只暖瓶,同一张餐桌,
他吃艾滋病人做的饭,
他吸艾滋病人递的烟……
他是非艾滋病感染者。
今年12月1日,是第23个世界艾滋病日。统计显示,近年来,天津的艾滋病病毒感染者和发病人数呈增长趋势。艾滋,这个令人恐惧的字眼,从来没有离开过我们的视线。每天奔忙着的人们觉得,它离自己很遥远。事实上,在我们这座城市里,有这么一些人,每天都在与艾滋“亲密接触”——他们或是艾滋病人,或是艾滋感染者,或者是志愿者。为了让更多人解除对它的不必要恐惧,懂得如何预防以及对自己或对他人进行必要的干预和关爱,他们每天都在做着努力。在世界艾滋病日来临之际,本报开辟专栏,对生活在我们身边的“艾滋相关人物”进行报道,以期尽到媒体责任,宣传防治艾滋理念。
志愿者篇
小新(化名),34岁,中等瘦削的身材,娃娃脸,显得比实际年龄小很多。接触之后,最大的感触是他外表的稚嫩与内心强大形成的强烈反差。作为一个事业有成的生意人,他做艾滋志愿者已经四年了。四年里,他经常与感染者亲密接触,不分吃喝,也没有被感染。
志愿者之初是为了朋友
采访小新,是在海河之星感染者工作组。这是一处位于红桥区的普通单元房。2006年8月,艾滋病感染者李虎创办了海河之星——天津最早的关爱艾滋病感染者的民间公益组织。从那时起,小新就在这里当志愿者。李虎是东北人,2000年来津,一度拥有四家中介连锁机构,2000年6月查出HIV阳性,继而创办了这个组织,关闭了公司,投入到艾滋关爱事业中。
起初,小新并不知道李虎是感染者,随着工作深入,他得知真相后,并没感到惊讶。“作为企业家,他能够迅速超越恐惧,投入到艾滋关爱中,这个精神令我感动,我愿意继续帮他做事情。”小新说。
近景
纸杯、公筷? 不需要
共用卫生间? 不可怕
揭秘志愿者的“艾滋生活”
提起在工作组的工作,小新笑言自己就像块砖。“像电脑维修啦,资料整理啦,什么需要就做什么。”说着,他带记者来到小屋,从文件柜里拉出两个大箱子,里面装着240多个档案袋。“这都是我们这里艾滋感染者会员的病历资料。这些资料虽然是他们最重要的东西,但因为害怕歧视或害怕吓到家人,他们的病历没地方放,这里是他们认为最安全的地方。”
也许因此,海河之星工作组被感染者称为另外一个家。这里也的确有着家的氛围,为了节约经费,工作组成员自己起火做饭,蒸煮炖煎等厨具,样样齐全。小新笑谈:“我不会做饭,只能白吃,所以愿意每天跟他们吃住在一起。”
小新自己做的是二手车生意,做了十几年了,比较熟练,也有人帮忙打理。因此,他一年中,基本上有七八个月和李虎他们在一起,相比之下,他更喜欢呆在海河之星工作组。
为了节约开支,这里不喝桶装水,都是用自来水烧开后灌在暖瓶里,每个人根据需求自己倒来喝。杯子是自己的杯子,来了客人,就用一次性纸杯招待,做饭吃饭与普通人家无异,餐具是共用的,并没有饭馆里提倡的公筷。“有时,哪个人感冒了,我们也会拿出一双公筷来,不是因为艾滋,是因为害怕传播感冒病毒。”
卫生间也是人们敏感的地方。经常跟感染者共用卫生间会不会被感染?“不会。但是要注意不要公用洗漱用品和剃须刀就可以了。”小新接着说,“现在共用这些工具的情况也不多了。”
“其实他们都很善良。”小新说,这是他和他们亲密接触后的真实体验。“因为都是他们在做饭,我白吃,他们在做饭的时候特别小心,哪怕手上有一点小伤口,都会及时用创可贴绑上,害怕传染给我。同时,提醒我也这样。”作为一个男人,以前,小新是不在乎一点小伤口的,现在,他们的创可贴使用率很高。
远景
人们歧视艾滋病:见不得人
人们恐惧艾滋病:马上会死
愿更多人了解艾滋常识
之所以如此自信和放松,小新称,源于自己对艾滋的了解。“艾滋的传播其实是很难的,它需要大量的血液,还需要非常特殊的环境,因为艾滋病毒在空气中很快就会死掉。这也是为什么性接触容易被感染的原因。”小新说,人们之所以会对艾滋病有歧视,有两个原因,一是认为艾滋病是在乱性的过程中得的,“得了艾滋病,一定是做了什么见不得人的事,是人们的常见说法。”二是因为很多人认为,得了艾滋病马上就会死。
事实上,不是这样的。“凡是治疗创伤性伤口,如果消毒不到位,都有可能感染艾滋病,比如街头游医拔牙、修脚这样的事就很危险,还有输血,也要小心。”小新说,之所以女性更容易感染艾滋病,就是因为女性生理构造有别于男性,因此,有保护的性行为(戴安全套),也是预防艾滋病的必要注意事项。
“我们在做志愿者的时候有一个隐私保护原则,就是从来不问艾滋感染者是怎么感染上的,除非对方主动说。我们只需确认他是感染者就可以了,以便我们开展相应工作。”小新告诉记者。
小新的骄傲
他递过来一支烟 我接了
在海河之星工作组,小新是唯一的非感染者。“我常和他们开玩笑,在这里,不是我歧视你们,是你们不许歧视我。”他的乐观给感染者莫大的安慰。“一个感染者知道HIV阳性之后,每天夜里两点用公用电话和我们交流。直到两三个月后,取得了一点信任,他才现身。在这里,他得知我是阴性的,整个吃饭过程中都在瞄我,见我大大方方地夹菜,他才放心。饭后,他递给我一支烟,我接过来吸了。他当即就哭了,说知道自己感染以来,总躲着人,还是第一次给别人递烟。”
小新做的更多的是感染者家属的心理干预。“感染者家属其实很脆弱。他们既害怕亲人死掉,又害怕自己被感染。我整天和感染者吃住在一起,也没被感染,这个事实本身,对感染者家属胜过任何说教。”
小新的顾虑
让父母完全理解 这很难
小新是河北省人。在老家有过一次婚姻,离了。他说前妻是一名公务员,因为不愿意丢了工作,没来天津。而他的生意又不允许他离开天津,二人分居时间一长,就和平分手了。现在牵挂小新的只有他的父母。
对于他从事艾滋关爱志愿者工作,二老是知道的,但是,他们并不知道小新每天与感染者吃住在一起。因此,小新告诉记者要用化名,照片也不要太清晰。“我的父母都是农民,想给他们讲清楚艾滋病没有这么可怕也很难。所以,我不愿意让他们知道我现在的处境。”
Organization into the care of HIV infected volunteers Secret Life of HIV
At 10:46 on November 26, 2010 Times Online
Camera, the small new requirements, with a focus on AIDS red ribbon symbol in front of his face
The same unit, same kitchen,
The same only thermos flask, at the same table,
AIDS made him eat rice,
He handed the cigarette smoke AIDS ... ...
His non-AIDS.
December 1 this year, is the first of 23 World AIDS Day. Statistics show that in recent years, Tianjin, and the incidence of HIV infection showed a rising trend in the number. HIV, the frightening words never left our sight. Bustle of the day, people think it is very far away from their own. In fact, in our city, there are so few people with HIV every day, "high touch" - they, or people with AIDS or HIV infection, or volunteers. To enable more people to lift it unnecessary fear, know how to prevent themselves or others and to make the necessary interventions and care in doing their work every day. World AIDS Day approaching, the newspaper column in which life in our midst, "HIV-related figures," the report, the responsibility to make to the media to promote HIV prevention and treatment philosophy.
Volunteer Posts
Little new (a pseudonym), 34-year-old, middle-thin body, baby face, looked much smaller than their actual age. After exposure, the greatest feeling of his strong appearance of the immature form with the strong contrast between the heart. Successful career as a businessman, he has been doing AIDS volunteer for four years. Four years, he often close contact with an infected person, regardless of eating and drinking and has not been infected.
Volunteers at the beginning was to Friend
Little new interview is infected in the Haihe River Star Working Group. It is located in Hongqiao District, one of ordinary apartment. August 2006, founded the AIDS Hu Li Hai Star - Tianjin, the first non-governmental AIDS care public organizations. Since then, little new here as a volunteer. Li Hu is the Northeast, to come to Tianjin in 2000, once owned four intermediary chain, in June 2000 found HIV positive, and then founded the organization to close the company into the cause of AIDS care.
At first, did not know Li Hu is a small new infections, with the depth of work, he learned the truth, no surprise. "As an entrepreneur, he can quickly go beyond fear into HIV care in this spirit that moved me, I am willing to help him do it." Little new said.
Close-range
Cups, chopsticks? No
Shared bathroom? Not terrible
Secret volunteers "HIV life"
Mentioned in the Working Group, he smiled that he is like a small new brick. "Rights such as computer maintenance, data compilation you, what need to do." Then, he took reporters to the house, from the file cabinet out of two large boxes, containing more than 240 portfolio. "This is our HIV-infected people here, the medical records of members. These data, although they are the most important thing, but scared because of fear of discrimination or fear of the family, no place to put their medical records, this is the safest place they think. "
Perhaps, therefore, the Haihe River Star Working Group was infected as another home. This indeed has a home atmosphere, in order to save funds, the working group members themselves on fire to cook, fried stew cooking and other kitchen utensils, everything complete. Little new joke: "I can not cook, can only eat for free, so willing to live and eat together with them every day."
Small is the new own used car business for over ten years, more skilled, it was also to help take care of. Therefore, he year, there are basically seven or eight months and Li Hu them, contrast, he prefers to stay in the Haihe River Star Working Group.
To save money, do not drink bottled water here, are filling with water boiled in the thermos bottle, each person needs their own down under drink. Glass is your cup to the guests to entertain with a disposable paper cups, cooking a meal is no different from ordinary people, dishes are shared, and there is no restaurant in the promotion of public chopsticks. "Sometimes, which were cold, and we will come up with a pair of chopsticks to, not because of AIDS, because of fear of spread of flu virus."
Is also a place where people are sensitive to the bathroom. Often share the bathroom with the infected person will not be infected? "No. But be careful not public toiletries and razors on it." Little New continued, "Now the situation is not common these tools and more."
"In fact, they are very good." Little new that this was his close contact with their real-life experience. "Because they are cooking, I eat for free, they are especially careful when cooking, even if a small hand wound with a band-aid will be tied in time, fear of infection to me. At the same time, remind me the same way." As a man, before the new do not care about a little small wounds, and now, their use is high Band-Aid.
Perspective
People discriminate against AIDS: people can not see
People in fear of AIDS: the right to die
I hope that more people know about AIDS knowledge
This is so confident and relaxed, said little new, from his understanding of AIDS. "In fact, the spread of HIV is difficult, it requires a lot of blood, but also a very special environment, because HIV will die quickly in the air. This is why sexual contact likely to be the source of infection." Little New that the reason why people would be discriminated against AIDS, there are two reasons, first, that AIDS is a disorder of the process to come by, "had AIDS, must have done something shameful thing is that people's common view. "Second, because many people believe that had died of AIDS soon.
In fact, not. "All the treatment of traumatic wounds, and if disinfection is not in place, there may be infected with HIV, such as street Youyi extraction, pedicure such a thing is very dangerous, there are blood transfusion, be careful." Little new that the reason women are more vulnerable to AIDS, is biologically different from men as women, therefore, protected sex (condom), but also the necessary precautions to prevent AIDS.
"We have a volunteer when the principles of privacy protection is never asked how HIV-infected persons is infected, unless the other party take the initiative said. We just need to confirm that he is infected can, so that we carried out accordingly. "little new to tell reporters.
The new pride of the small
He held out a cigarette I took
Star of the working group in the Haihe River, the small new is the only non-infected. "I often joke with them, where I did not discriminate against you, that you must not discriminate against me." Infected his optimism to the great comfort. "A known HIV-positive after infection, two points every night, and we communicate with the public telephone. Until two or three months, get a little confidence, he was coming out. Here, he learned that I was negative, the entire are in the process of aiming to eat me, see me openly and take their food, he was at ease. After dinner, he handed me a cigarette, I took to smoking. He immediately started to cry, saying that they are infected since Total dodging people, is the first time to someone else Diyan. "
Little new to do more family members is infected with the psychological intervention. "HIV is very fragile families. They both fear their loved ones die, and fear they are infected. I live and eat together all day, and infected, there is no infection, itself, more than any of the families of infected preaching. "
Concerns of small new
It's hard to fully understand the parents
Little new is in Hebei Province. Have been married in the home, away from. He said his ex-wife is a civil servant, because do not want to lose their jobs, did not come to Tianjin. His business is not allowed him to leave Tianjin, two separated over time, broke the peace. Only now worried about his small new parents.
For his volunteer work in HIV care, the old couple are known, but they do not know that a small new infections every day and room and board together. Thus, small to use his real name, told reporters the new, photos, and do not be too clear. "My parents were farmers, want to make it clear they are not so terrible AIDS is difficult. So, I do not want to let them know of my situation."