邢台艾滋病家庭问题访谈之二—— (陈**)


邢台艾滋病家庭问题访谈之二—— (陈**)

 
 
 
 
 

邢台艾滋病家庭问题访谈之二—— (陈**) 附带图片

452598814    发表于 2011年03月10日 13:31 阅读(71) 评论(0) 分类: 个人日记
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艾滋病使她失去了健康,失去了可爱的儿子。她自己身体就不好,还要独自抚养女儿,很不容易的,希望政府,能帮助处在生存危机中的困难家庭。


 陈(女)自述:

我自己感染了HIV。我儿子五岁的时候,查出感染了这个病,因为没有及时得到治疗去世了。

在2003年,政府大普查了之后,发现我们得了这个病。我当时,不能接受。当时,女儿只有九个月,丈夫也崩溃了。我们在外面打工,当时连门卫都不能接受这病,不让我们进去。

2006年,有了艾(艾晓明)老师的帮助之后,政府也有点照顾,看到老师的火热心肠,感到生存有一点希望。

老师不断地帮助,当时政府就补助了生活费,生活还算改善一点。那时我还在打工,一个月能挣三四百块钱。因为歧视,一直到现在我们都在外面租了五六年房子住。村子里的红白喜事都没有回家过过.一直是我跟孩子(女儿)在外面过。

现在我身体已经不行了,因为服药的副作用,腿都特别细,我们去找医院赔偿,但现在都没有得到。

我住的房子,房租是200多.每个月的收入就是政府补贴三百块。我家还欠有外债两三万,原来儿子看病的帐还没还清。

我婆婆那里的人都不能接受我。我的女儿,营养不良.她都不敢说自己十岁,都说五六岁,因为个头,看起来特别小。

我丈夫住监狱,被捕了。没有人照顾我们,孩子们两岁多就是我一个人带着孩子生活。

因为服用艾滋病药物,现在脂肪转移,造成心脏不好受,手臂疼。有时候我哭,感觉生活很绝望,孩子就说,“妈妈,如果你有一天不在了,我立刻就死了。因为我没有一个依靠.你死了之后,我不知道去哪儿受罪,所以,我就跟你一起死。”

孩子说,你死了我就挨着你死了。

现在孩子在上学,已经上三年级了,学习特别好.孩子没有教育补贴,就是每个月就是三百块钱,其他都没有。

来的时候在车上,孩子说,妈妈你有药吗?我希望你多活两天.只要有你一天,我就能幸福一天.

去年过年的时候,去民政找过许多次.民政局说话特别难听,他说民政局又不是为你一个人开的,困难的又不是你一个人.

我的问题是:

1、受歧视特别严重,娘家婆家都没有办法接受.

2、生活困难,现在没有办法工作.药物反应太历害,已经没有办法工作,和照顾孩子。

3、没有住房,孩子的教育问题,自己看病的问题,基本生活问题都没有办法解决。

现在物价上涨,感觉生活特别困难,有点生活不下去了.我们需要有关人士关注关注我们,一个月三百块的生活还要照顾孩子,还要租房子,三百块钱根本不够。

我的爸爸妈妈身体也不太好,我也要去照顾他们.

我希望我的孩子也能得到低保救助.

当年温总理到沙河来,我想去看看,也许能找温总理说说,可后来,被公安抓去了。当时很多人在下跪,我没有跪,只是跟在后面,也被抓了。当时我的精神受了刺激,自己的孩子都不认识了,不知道穿衣服,到处跑。我们出了看守所,还没有得到自由.领导还在监控我.当时派两个女人,监控.一进去她们就带上手套,戴上口罩,给我心理压力特别大.我想我并没有犯罪,为什么这样对待我。

 
图片

 

艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复

 
图示∶2010年12月即将出版的《中国特色医疗金鉴》登载的刘君主任及其机构 
 
 

慢性艾滋病早期中医药治疗保障生命论证

红津液饮料面世 或将能预防艾滋病

更多来源∶新浪商业登载
http://vic.sina.com.cn/news/27/2010/1231/26801.html


TOM新闻登载

http://post-social.news.tom.com/s/63000AD83310.html

中国青年网 健康频道

http://news.youth.cn/jk/201012/t20101231_1447239.htm

 环球时报-环球网

http://news.163.com/10/1231/15/6P8B7PTU00014JB6.html


 环球网

http://china.huanqiu.com/hot/2010-12/1390550.html

 

 

Xingtai AIDS Family Interview - (Chen **)
 
March 10, 2011
 
 
AIDS lost her health, loss of a lovely son. Her own body well, but also raising her daughter alone, not easy, I hope the Government can help in a crisis of survival in difficult family.


Chen (female) Readme:

I'm infected with HIV. My son is five years old, found infected with the disease, because there is no timely treatment died.

In 2003, the Government after the census and found that we had the disease. I was not accepted. At that time, her daughter is only nine months, the husband collapsed. We are working on the outside, when even the guards can not accept this disease, let us go.

In 2006, with Ai (Ai Xiaoming) with the help of teachers, the government has little care for the teacher to see the fiery heart Ai am living a little hope.

Ai teachers continue to help, when the government grants a living, things are improving a bit. At that time I was working a month earn three or four hundred dollars. Because of discrimination, until now we have rented out a house to live five or six years. Weddings and funerals in the village did not come home too. I have been with the child (daughter) on the outside too.

Now my body has to die because of medication side effects, especially thin legs, we went to the hospital for compensation, but have not been.

I live in the house, rent is 200. The monthly income is three hundred government subsidies. My family has two or three million debt owed to the original son of a doctor's account has not paid off.

My mother can not accept people where I am. My daughter, malnutrition. She did not say their age, say five or six, because the head looks very small.

My husband live in prison, was arrested. No one to take care of our children more than two years that I am a person living with children.

Because taking AIDS drugs, and now fat transfer, causing the heart feel good, arm pain. Sometimes I cry, I feel life is hopeless, the children said, "Mom, if you have a day gone, I immediately died. Because I do not have to rely on. You were dead, I do not know where to suffer, so I just like to die with you. "

Said the child, you die next to you I die.

Now children go to school, has been in third grade, and learning particularly well. Children without education subsidies, is three hundred dollars a month, the other did not.

Came in the car, the children said, Mom, you have medicine? I want you to live for two days. As long as you one day, I can happy day.

Last year the festival, go to the Home to find many times. Civil Affairs Bureau, speaking particularly nasty, he said, are not you a Civil Affairs Bureau, who opened, are not you a difficult person.

My question is:

1, discrimination is particularly serious, her parents have no way to accept the husband's family.

2, hardship, there is no way to work. Calendar harm drug reactions too, has no way to work, and child care.

3, no housing, children's education, their medical care issues, basic issues are not a solution.

Now prices and feel of life particularly difficult, a little mad to live. We need to focus our attention on people, three hundred dollars a month to take care of the child life, but also to rent an apartment, three hundred dollars was not enough.

My body is not very good parents, I'm going to take care of them.

I hope my children can have minimal needs help.

Premier Wen to River then, and I want to see, may be able to look for Premier Wen to talk about, but then, by the public security taken by it. Many people in the knees, I did not kneel, but followed, also was arrested. I was under the spirit of the stimulation, their children do not know, I know not to wear clothes around. We are out of the detention center, is still not free. Leadership is still monitoring me. Two women were sent to monitor. Once inside they are to wear gloves, wear a mask, give me the psychological pressure is particularly great. I think I committed no crime, why do this to me.
 
 
 
 
 

[ 作者:佚名    转贴自:本站原创    点击数:196    更新时间:2011-3-11    文章录入:nnb ]