
丁陈丽工作场景
常武太湖医院,除了麻风病防治工作外,还负责武进全区艾滋病防治工作,医院设有艾滋病自愿咨询检测门诊、美沙酮药物维持治疗中心和艾滋病抗体检测初筛实验室。作为医院的医生,丁陈丽从2005年开始接手艾滋病防治工作,多年来,她始终耐心、锲而不舍地进行着艾滋病的宣传、干预工作,并在工作中不断总结经验,提高沟通技巧和能力,她与同事的不断努力,使全区性病发病率有了明显的下降。
新挑战——艾滋病防治工作
自2000年6月武进发现首例艾滋病感染者以来,艾滋病病毒感染者和发病人数呈逐年增长趋势,2005年丁陈丽接手艾滋病防治工作,义无反顾得挑起了防艾重任。
暗娼、同性恋、流动人口、吸毒人群是艾滋病的高危人群,对这部分高危人群进行有效干预将大大降低艾滋病感染率。为此,常武太湖医院性病、艾滋病防制科专门组织了一个高危行为干预小组,作为成员之一,丁陈丽每月一次深入娱乐场所和重点场所进行宣传,到乡镇企业针对流动人口开展艾滋病防治知识宣传,并发放安全套。
“很多人对艾滋病有偏见,因为不懂它是怎样传播的。”丁陈丽认为,虽然近几年大家对艾滋病的认识有所改善,但这还远远不够,在发放宣传资料时常常被人拒绝甚至嘲讽。有一次,她去乡镇上发艾滋病防治宣传单,就有村民说:“艾滋病是做了坏事的人才得的,不要发给我们。”社会上的偏见和歧视,对艾滋病感染者和病人来说无疑是莫大的伤害,“在我眼里,他们首先是病人,我有责任去帮助他们解除痛苦,不论是艾滋病病人还是感染者,他们都是不幸者,我们应该用更多的爱去温暖他们,点燃他们生活的希望。”。
工作之余,丁陈丽的手机是24小时开着的,因为经常会有病患会打电话和她聊天,从艾滋病服用药物出现的副作用到生活中的各种烦恼,许多不敢跟别人甚至是自己的父母说的话,他们都会和丁陈丽交流。而丁陈丽是一个很好的倾听者,她总是会耐心的帮助病患或感染者树立信心,并及时获得治疗,给予他们更多的心理关怀。
创新工作方式——建立QQ群交流
“每个患者最初都不愿意相信事实。”开始治疗前,因病人本身还不知道得病的事实,她坚持与每位病人一对一谈话,把检测结果通知本人。曾有一个男士,在他被告知感染艾滋病病毒后,他非但不能接受,还觉得丁陈丽是污蔑他,不肯接受治疗。任凭丁陈丽变着号码拨打他的电话,这位男士只要一听到她的声音便立刻挂断。电话已经打了一年,对方不接,她只能从乡镇上防保人员了解其身体健康状况,但丁陈丽说,她仍坚持下去。
由于目前防制工作面临艾滋病传播方式更加隐蔽,很多人有疑问也不愿咨询医生或主动到医院检查,更不愿意与医生面对面交流。在一次和病人的偶然沟通中,丁陈丽得到了启发,她利用网络建立了几个QQ群,有选择性的将病人加入群中,在虚拟的环境中聊天,避免了面对面的尴尬,病人可以敞开心扉畅所欲言,比如在治疗过程中遇到问题,自己有什么健康心得,大家可以一起交流,相互帮忙出主意。因为是同病相怜,孤独的艾滋病人终于有了“家”的温暖。而每天不管有多忙,丁陈丽一定要打开电脑跟他们聊一聊,平常则会委托两位管理员,帮忙答疑解困。
从不被信任到最信赖的“知心人 ”
“以同情之心善待患者,以关爱之情帮助病人”丁陈丽说,“他们受到社会的歧视和排斥,这是大家对艾滋病的认识还不够。他们是病人,不是罪人。我们应该关怀他们,鼓励他们走出阴影,让他们勇敢地站起来。”对于艾滋病病毒感染者,一句温馨的话就能使他们感到温暖如春,就连一个小小握手举动,也能增强他们战胜疾病的信心。面对人人惧怕的艾滋病感染者和病人,她以一个医务工作者崇高的职业道德,主动去贴近他们,给他们送去温暖、送上一份爱心。
为了保护艾滋病人的隐私,她和病人是单线联系的,小张是丁陈丽治疗的第一个男同(男同性恋)患者,这个男孩成长在单亲家庭,经济上并不宽裕。丁陈丽很关心他,每次小张去医院治疗,她就算再忙都抽空陪同前往,并四处奔波为小张申请到了免费治疗。小张的妈妈为了感谢丁陈丽,想邀请她一起吃饭,没想到丁陈丽爽快的答应了。“这是不会有危险的,我做这个的很清楚,艾滋病只能通过血液传播和性传播,吃饭、握手等都不会传染。如果我拒绝了,就是告诉感染者你害怕了,那么感染者怎么会信任你?还谈什么关怀、爱护他们?”这一举动让小张更加信任丁陈丽了。在她建立的QQ群中,小张就是管理员之一。
功夫不负有心人,经过多年的努力,在病人的眼里,她的角色渐渐转换,成了他们严重最需要和最可爱的人。因为丁陈丽始终给予他们家人般的关心,他们和丁陈丽成了朋友,每个病人每年至少要联系7次,并定期随访。虽说现在按规定他们可以直接与所在乡镇的防保医生联系,但仍有7个人要求跟着丁陈丽治疗。因为在他们心中,丁陈丽是他们最信赖的“知心大姐”。
艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复 艾滋病不治会早死,早治才康复
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图示∶2010年12月即将出版的《中国特色医疗金鉴》登载的刘君主任及其机构 |
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Ding Chenli: AIDS patients with the most reliable "agony aunt" (b) Source: News of Wujin: Yao Hui Date :2011 -02-23 20:41:08
Ding Chenli scenes work
Chang Wu Lake Hospital, in addition to leprosy control work, is also responsible for AIDS, Wujin district, hospital out-patient with HIV voluntary counseling and testing, methadone maintenance treatment of drug testing centers and AIDS antibody screening laboratory. As a hospital doctor, Dingchen Li took over from the 2005 AIDS over the years, she has patience, perseverance for the AIDS awareness, interventions, and work constantly sum up experience, improve communication skills and abilities, she the continuous efforts with colleagues to make a marked decline in the region 性病发病率.
New challenges - AIDS
Since June 2000, Wujin, since the first case of AIDS, the incidence of HIV infection and the number increasing year by year, took over in 2005 Dingchen Li AIDS, AIDS prevention task hesitate to get provoked.
Sex workers, homosexuals, migrants, drug users are at high risk of AIDS, this part of effective interventions for high-risk groups will greatly reduce HIV infection rates. To this end, Chang Wu Lake Hospital, sexually transmitted diseases, AIDS Prevention Branch organized a special high-risk behavior intervention group as a member of the Ding Chenli monthly in-depth and key places of entertainment publicity, to the TVEs AIDS for migrants promote prevention knowledge and condom distribution.
"Many people are prejudiced against AIDS, because do not know how it is spread." Dingchen Li that, although in recent years we have improved the understanding of AIDS, but far from enough, the release of publicity materials are frequently refused to even ridicule. Once, she went to town on AIDS prevention leaflets issued, there are the villagers said: "AIDS is people do bad things get, do not send it to us." Prejudice and discrimination in society, for patients who have AIDS and is undoubtedly a great harm, "In my eyes, they first patient, I have a responsibility to help them relieve pain, whether infected or AIDS patients, who are less fortunate, we should use more love to warm their , to kindle their hope in life. ".
Outside of work, Ding Chenli phone is open 24 hours, because there is often a patient will call and talk to her, from the side effects of AIDS drugs in the various troubles of life, many not even with other people is their parents say, they will, and Dingchen Li exchange. The Dingchen Li is a good listener, she will always help the patient or the patient infected with confidence, and timely access to treatment, give them more psychological care.
Innovative ways of working - to establish communication QQ group
"Every patient, at first reluctant to believe the facts." Before starting treatment, patients themselves do not know get sick because of the fact that she insisted on talking one on one with each patient, the test results inform me. There was a man, he was told in HIV infection, he not only unacceptable, but also that Dingchen Li to be insulting him, and refused medical treatment. Dingchen Li and changing the number despite his phone calls, the man heard her voice as long as they immediately hang up. Phone has been playing for a year, they do not take, she could only protect people from the township on the anti-understand their physical health, but Dingchen Li said that she still stick to it.
Due to the current spread of AIDS prevention work is facing a more subtle way, many people do not want to doubt the initiative to consult a doctor or hospital, more reluctant to face to face with the doctor. And the patient's chance in a communication, Dingchen Li has been inspired by her use of the network established several QQ group, selective patients to join a group, in the virtual environment to chat, to avoid the embarrassment of face to face, the patient can open their hearts freely, such as problems in the course of treatment, what their health experience, we can share together, help each other ideas. Because it is the same boat, alone of AIDS finally "home" warmth. No matter how busy every day, be sure to turn on the computer Dingchen Li chat with them, usually will be commissioned by the two administrators, help Q & A Rebate.
Never to be trusted to the most trusted "somebody bends"
"Patients treated with compassion, caring feelings to help patients," Dingchen Li said, "they are social discrimination and exclusion, which is our awareness of AIDS is not enough. They are patient, not the sinner. We should care for them to encourage them out of the shadows, so that they bravely stood up. "For HIV, a warm if you can make them feel warm as in spring, and even shake hands with a small act, but also enhance their confidence to overcome the disease. Everyone feared the face of AIDS and patients, medical workers she was a high work ethic, take the initiative to close them and sent them warm, to send a love.
To protect the privacy of people with AIDS, she and the patient is single link, Zhang Ding Chenli treatment is the first gay (male homosexual) patients, the boy grew up in single-parent families, not well-off financially. Ding Chenli very concerned about him, Zhang went to hospital for treatment every time, no matter how busy she is even taking the time to accompany, and running around to a free application for the treatment of Zhang. Zhang's mother to thank Dingchen Li, would like to invite her to dinner and did not expect Dingchen Li readily agreed. "This is not dangerous, I do this very clear, only through blood transmission of AIDS and sexually transmitted, eating, shaking hands and so can not be transmitted. If I refused, afraid of is to tell you infected, then the infection how will those who trust you? also talk about care, love them? "The move to more confidence in Dingchen Li Zhang was. QQ established in her group, Xiao Zhang is one of the administrators.
Hard work pays off, after years of efforts, the patient's eyes, her role gradually converted into their most serious need and the most lovable person. Always give them because Dingchen Li family-like care, they Dingchen Li became friends to contact each patient at least 7 times a year, and regular follow-up. Although they are now required where the township directly with doctors to contact the anti-Paul, there seven individual requirements follow Dingchen Li treatment. Because in their hearts, Dingchen Li is their most trusted, "the agony aunt."